tag:blogger.com,1999:blog-9041936322035912190.post4172317543839121287..comments2023-05-17T01:12:21.817-07:00Comments on Clearly Alive: The Importance of a StoryAnonymoushttp://www.blogger.com/profile/06636587607618735043noreply@blogger.comBlogger5125tag:blogger.com,1999:blog-9041936322035912190.post-91513665769088772232013-12-05T06:00:36.032-08:002013-12-05T06:00:36.032-08:00Welcome to my blog :)
Since I have posted this, y...Welcome to my blog :)<br /><br />Since I have posted this, yes I have found help. Endo #5 made it her mission to get me into one of the best endocrinologists in the country. I'm now on Endo #6 and she is absolutely amazing! I've also found a much better way to introduce myself to doctors. After seeing 14 different specialists between my crisis in April and wrapping things up in September, this speech is well practiced! I've learned to now warn them that I am an engineer. I do not have a medical background but the only thing I do all day long is look at data to draw conclusions to the true root cause. I apply the exact same problem solving skills to my own body. Are they willing to partner with me?<br /><br />Endo #4 was not. Endo #6 is. I had to wait until August to get into Endo #6, but I finally feel as if I am in good hands. And that is exciting for me :)Anonymoushttps://www.blogger.com/profile/06636587607618735043noreply@blogger.comtag:blogger.com,1999:blog-9041936322035912190.post-44847272310631264272013-12-05T00:37:45.003-08:002013-12-05T00:37:45.003-08:00Amber I just began to read your blog today 12/5/13...Amber I just began to read your blog today 12/5/13. I am wonder if since this post you have found some help? I ask as I have had Addison's for about 10 years now. Do you not have an injectable steroid at home for when you can not keep down your oral medication? I do and as an AD patient I have to have one on me at all times, along with a medical alert bracelet/necklace. Also keep looking for a endo you can trust. It's just like us going on a job interview, I have learned thru my years with the illness that you must "take charge" in a way and have a doctor that you can do that with. I to have had doctors look right at me and say well "They didn't teach us this one" or "Your case is not text book" and "Well, your one in a million" HA! Oh and too a good internal medicine doctor is best not just a family and/or general doctor. I just began to read your blog, I will continue! You've brought me to tears and hit so many of the feelings I have had over the years. <br />Amber, Thank you... I don't think you will ever know what your words and sharing your story has done for me and will continue to do for me. My mom has said and felt so many of the things your mom has! I say all the time that my mom was and still is my voice when I feel lets say "fuzzy." <br />Please keep going no matter how hard because I'm going to keep reading and again thank you.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-9041936322035912190.post-69395151323358057252013-08-14T05:18:42.763-07:002013-08-14T05:18:42.763-07:00Thank you Jade :)
And welcome!
~AmberThank you Jade :)<br />And welcome!<br /><br />~AmberAnonymoushttps://www.blogger.com/profile/06636587607618735043noreply@blogger.comtag:blogger.com,1999:blog-9041936322035912190.post-21906488950984696422013-08-13T22:47:55.725-07:002013-08-13T22:47:55.725-07:00Just found your blog from Dusty's site. I will...Just found your blog from Dusty's site. I will continue reading. Just come off of 2 off weeks myself with Addison's and found myself drawn to the support that others with Addison's can offer. Please keep writing - JadeAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-9041936322035912190.post-47358211386682397742013-05-19T20:51:13.010-07:002013-05-19T20:51:13.010-07:00Hi Amber, I've been reading your blog for a wh...Hi Amber, I've been reading your blog for a while. I'm so sorry, these past few weeks sound like they've been miserable for you. I'm always so interested to read your experiences since I was diagnosed with Adrenal Insufficiency a little over a year ago. My PCP was actually the one who diagnosed me, the Endo she referred me to just wasn't working out for me, so I found a new Endo and she is wonderful. I'm not sure but I think you and I may live in the same area. I'm in N.Dallas (Plano area) and my Endo is not too far away if you want a referral. She is an amazing dr, very willing to listen, wants thorough testing, and provides and explains results. She has given me SO MUCH hope! If you want to email me I can give you her info. laceyheadley (at) gmail (dot) com. Your experience with fainting and seizing and going into a crisis and not knowing why is something I fear for myself as well, I hope you are able to find out what caused it. Please update when you do.<br /><br />LaceyAaron, Lacey, Audrey and Ellehttps://www.blogger.com/profile/06267299379204573593noreply@blogger.com