tag:blogger.com,1999:blog-9041936322035912190.post4952860044590737035..comments2023-05-17T01:12:21.817-07:00Comments on Clearly Alive: The DiagnosisAnonymoushttp://www.blogger.com/profile/06636587607618735043noreply@blogger.comBlogger3125tag:blogger.com,1999:blog-9041936322035912190.post-82630110956668230902013-05-09T15:03:20.460-07:002013-05-09T15:03:20.460-07:00Thanks! It gives me alot of hope. As scary as al...Thanks! It gives me alot of hope. As scary as all this is because it is new information, I understand that feeling of freedom. It finally has given me an explanation as to why I ended up in the hospital with my son whenever he got sick. They always chalked his sickness up to getting 'a really bad virus' instead of actually looking into what caused him to crash so fast. We live in AZ...and from what I have read you at one time had too. We finally got these answers when I took him to Phoenix Children's Hospital instead of Cardon Children's. At Cardons all they did was treat the symptoms, and then send him home when he was stable. PCH actually took the time to figure out why...and for that I am thankful.Crissybughttps://www.blogger.com/profile/03453930237461358884noreply@blogger.comtag:blogger.com,1999:blog-9041936322035912190.post-23498227043190303132013-05-09T08:26:17.747-07:002013-05-09T08:26:17.747-07:00Hi Crissy,
It sounds like it has indeed been a cr...Hi Crissy,<br /><br />It sounds like it has indeed been a crazy week for you! I am so thankful you stumbled upon my blog. There are a wealth of resources available online and even some amazing FB support groups that are such an encouragement.<br /><br />To answer your question about the diagnosis name change, I don't think they ever tested me for the antibodies. My first endocrinologist left out a couple of key tests that would have provided a bit more information about my case. He didn't want to call it "Addison's" but he did want to start me on the steroids.<br /><br />Three years later, I moved to another state and saw a new endocrinologist. It was too late to run the tests because I had already been on treatment during those three years, which skews the results. This new endo decided to use process of elimination. I can't remember all the tests he ran, but he was the doctor that confidently stated "Addison's Disease."<br /><br />Good luck as you begin this journey! I am so incredibly blessed to have a mom that has walked beside me as I deal with the up's and down's of Addison's. Thomas's life might look a little different moving forward, BUT with proper treatment and a good support group there's no reason that he should surrender any of his dreams.Anonymoushttps://www.blogger.com/profile/06636587607618735043noreply@blogger.comtag:blogger.com,1999:blog-9041936322035912190.post-41509109297712168582013-05-09T06:35:55.567-07:002013-05-09T06:35:55.567-07:00Hi, I am a mother and my 5 year old son has just ...Hi, I am a mother and my 5 year old son has just been diagnosed with PAI on Sunday. We are going in this week to have additional testing done to see if it is Addisons. They are also going to be testing my 9 year old son as he has been hospitalized a few times under somewhat similar conditions so they suspect he has PAI too. It has been a roller coaster the past 2 years, and finally we seem to have answers as to why my 2 boys ended up in the hospital when they got sick. <br /><br />My question to you is why did it take 3 years for them to determine it was Addison's? Did antibodies not show up in initial testing? <br /><br />Needless to say this has been a crazy week. I have been reading as much as I can to help understand how I best can help my Thomas. Thank you for this blog. It is comforting to know that there are people out there that understand exactly what we are going through.Crissybughttps://www.blogger.com/profile/03453930237461358884noreply@blogger.com