tag:blogger.com,1999:blog-9041936322035912190.post2355461499905375348..comments2023-05-17T01:12:21.817-07:00Comments on Clearly Alive: A Plan of ActionAnonymoushttp://www.blogger.com/profile/06636587607618735043noreply@blogger.comBlogger7125tag:blogger.com,1999:blog-9041936322035912190.post-76508028859523173562016-10-30T02:30:43.865-07:002016-10-30T02:30:43.865-07:00What a wonderful site! Thank you so much for shari...What a wonderful site! Thank you so much for sharing this up to date information / so valuable for me! <br />I am currently in hospital recovering from an Adrenal Crisis that I tried so very hard to manage at home. I have learnt so much in finding this site and in watching the Addison Crisis video of Deb. I was so relieved to see someone else experience such similar reactions to mine. I thought I must have epilepsy as well, as these symptoms of crisis are never talked about in the literature. <br />I would love to find outotr about Aust Support Groups and stay in touch with the information you share. <br />I'm sorry but I don't even know how to post this properly, so I'll add my email. <br />A million thsnks - Vicki Godwin<br />vickigodwin1@bigpond.comAnonymoushttps://www.blogger.com/profile/04777516733383670990noreply@blogger.comtag:blogger.com,1999:blog-9041936322035912190.post-79051641518456697272016-10-13T07:43:41.028-07:002016-10-13T07:43:41.028-07:00Hi Debbie,
Dexamethasone is a longer acting stero...Hi Debbie,<br /><br />Dexamethasone is a longer acting steroid. It contains no mineralocorticoid properties, but it is very useful when you need to elevate your base dose just slightly. One dose can last in your system for around 36 hours.<br /><br />As for the salt tabs, I have had several medical tests run that prove that my body salt wastes. I cannot hold onto sodium and I am prone to rapid dehydration. Dehydration can trigger an Addisonian Crisis, so being able to supplement quickly with salt tabs has kept me in the safe zone a few times.<br /><br />With flu shots, I prefer to remain silent on that issue. That is something you must discuss with your doctor and make the best choice for you :)<br /><br />~ AmberAnonymoushttps://www.blogger.com/profile/06636587607618735043noreply@blogger.comtag:blogger.com,1999:blog-9041936322035912190.post-88568224369265224992016-10-10T07:54:23.086-07:002016-10-10T07:54:23.086-07:00What is decamethosone and why do you use it?
Why s...What is decamethosone and why do you use it?<br />Why salt tabs and when would you use?<br />Since it is flu season, I got prescription for Tamiflu and carry that with me.<br />Do you get flu shots?Anonymoushttps://www.blogger.com/profile/00119121525226847013noreply@blogger.comtag:blogger.com,1999:blog-9041936322035912190.post-6652249907408247672016-10-09T19:33:14.720-07:002016-10-09T19:33:14.720-07:00Oh! Yes! Good point! I carry generic Zofran everyw...Oh! Yes! Good point! I carry generic Zofran everywhere with me, but that's just in a different bag. I actually have three bags / kits.<br /><br />I have my emergency injection kit, which I described above.<br /><br />I also have a cortisol pump emergency kit. It has everything needed to change my site if I'm on the go. It also has ample supply of AAA batteries, because I don't ever want my pump battery to die and have no replacement.<br /><br />My third kit has oral cortef, dexamethasone, salt tabs, and Zofran. <br /><br />Or rather, generic Zofran. My script is for 4MG Ondanestron ODT. I've actually never been able to get brand name Zofran, but the generic has saved me several times.Anonymoushttps://www.blogger.com/profile/06636587607618735043noreply@blogger.comtag:blogger.com,1999:blog-9041936322035912190.post-83168551320442488802016-10-09T18:40:57.613-07:002016-10-09T18:40:57.613-07:00Recently, I've been thinking I should put Zofr...Recently, I've been thinking I should put Zofran with my kit. I tried to get a prescription, but no pharmacy in my area will order it. They only carry generics, so I didn't get it. Do you think the generic will work as well? I'm like you, the genetic Cortef didn't work at all and I was in horrible shape until I insisted on the actual Cortef.<br />Thank you for explaining about the temperature problems with the Solu-cortef. I do not have air conditioning and my house can get as high as 100 degrees these days. Pfizer told me not to put it in fridge, so I've always been nervous about how effective it would be in an emergency.Anonymoushttps://www.blogger.com/profile/00119121525226847013noreply@blogger.comtag:blogger.com,1999:blog-9041936322035912190.post-41554336323298005342016-10-09T12:43:17.841-07:002016-10-09T12:43:17.841-07:00Hi Debbie,
Of course! I have three of these kits ...Hi Debbie,<br /><br />Of course! I have three of these kits and they are all identical. One, I carry on me at all times. It's never more than an arm reach away. The other sits at my office desk. The third resides in the desk of my office manager. Previously, the third was hung on the wall in my lab (that's the one in the picture).<br /><br />Contents:<br />- 2 mL Solu-Cortef Act-O-Vial (NDC 0009 - 0011 - 03)<br />- 1-2 inter-muscular needles. The one I'm looking at now states that it's 21G, 1 in, 3 mL but be sure to check with your pharmacist to see which one they recommend for you.<br />- Band-aides<br />- Sterile Alcohol Swabs<br />- Documentation from AIU ( http://shop.aiunited.org/Basic-Kit-GKD.htm )<br />- Color instructions on how to inject ( http://www.cah.org.nz/__data/assets/pdf_file/0008/22877/SoluCortefInjection.pdf )<br />- Small pair of scissors ( https://www.walmart.com/ip/Sparco-5-Kids-Pointed-End-Scissors-5-Overall-Length-Pointed-Red-spr-39044/43622213 ) <- I added those because I'd rather have coworkers cut a hole in my pants than strip my pants off, and the injection is supposed to be given in the thigh<br /><br />As for keeping the Solu-cortef around 68 degrees, I just try to keep it indoors. This is a more critical requirement AFTER the medicine is mixed as the un-mixed powder is less sensitive to temperature changes. However, I still recommend not leaving the Act-O-Vials in garages or cars for an extended period of time.<br /><br />I hope that helps! :)<br /><br />~ AmberAnonymoushttps://www.blogger.com/profile/06636587607618735043noreply@blogger.comtag:blogger.com,1999:blog-9041936322035912190.post-55440600629728575122016-10-09T09:10:23.800-07:002016-10-09T09:10:23.800-07:00Thank you for this valuable information. In the pi...Thank you for this valuable information. In the picture, I see a ziplock bag with emergency items. Can you please list these items?<br />Also, I understand that the Solu-cortef is supposed to be maintained at temperatures around 68 degrees. How do you handle that?Anonymoushttps://www.blogger.com/profile/00119121525226847013noreply@blogger.com