Sunday, January 22, 2017

One Year in Nevada

I use an app on my phone called timehop. I link together all my social media accounts, and every morning it reminds me of memories. This past week, it notified me that it's been one year since we moved to Nevada.

My facebook status from when my husband arrived.

The move started out with my mom meeting me in Sacramento to drive over the pass together.

The Olive Thief wondering where I have taken him.

A few days later, my husband and his good friend arrived from Texas with the rest of our belongings.

To our friends in Texas that helped us pack up, thank you.
Thank you. Thank you. Thank you. Thank you.

We welcomed many friends and family to our new home this first year. Some were able to stay for only a meal while others were able to stay for the night. All in all, we had over twenty visitors. This does not include the two board game nights that we hosted for our FRC Robotics Team and any occasional four legged friends.

My grandfather became friends with Miss Charlotte.

In August, we closed on our house and began a major home remodel. We are currently knee deep in the remodel, which is a combination of my husband's DIY efforts and a professional contractor.

Our house is a mess of boxes, covered furniture, construction tools, and three cats running around like crazy. The dog mostly sleeps.

It's an odd feeling as I walk through our vacated apartment less than a year from when I first picked up the keys. Our first year in Nevada was a tumultuous one. Our hope is to remain here for a while. I am perfectly content living the Clearly Alive lifestyle with less crazy adventures.

Our friends in Nevada are also amazing.
To those who helped us move and clean, thank you. Thank you. Thank you. Thank you.

Sunday, January 15, 2017

ICYMI, AFAA: On Medical Alert Bracelets

In case you missed it, Action for Adrenal Awareness released January's video on YouTube. This month, I spoke on the importance of wearing a medical alert bracelet.



On Why You Need One:

Y'all, view this as your voice when you don't have one. A medical alert bracelet is nothing to be ashamed of, and it can save your life. As we start to crash, it is imperative that people know what they are dealing with.

We require a 100 mg solu-cortef injection immediately.
We should be clearly labeled to let others know.

These are some of the alerts I have used over the years.

On What to Say:

It is important to avoid the specific diseases such as "Addison's" or "CAH" or "Secondary Adrenal Insufficiency" because that can confuse the medical community. What's important is that they know your adrenal glands are dead (adrenal insufficiency) and that you need steroids in an emergency (steroid dependent).

Adrenal Insufficiency United recommends the following phrasing:

Adrenal Insufficiency:
Steroid Dependent

The National Adrenal Disease Foundation recommends the following phrasing:


When I crashed in a medical office back in 2013, both the ER nurse and the EMT admitted that they did not understand my medical alert bracelet. At the time it read "Addison's Disease. Steroid Dependent." I rewrote my bracelet to remove any possibility of another misunderstanding.

Give Drugs or Watch Die.
I added the poignant phrase of "Give Drugs or Watch Die." When I start to crash, people have two options. They can either give me my emergency injection of solu-cortef or they can watch my body go into shock as I come closer and closer to death.

Very simple flow chart.

My current bracelet reads:

FIRST NAME LAST NAME / YYYY
ADRENAL INSUFFICIENCY
** STEROID DEPENDENT **
100MG SOLU-CORTEF
INJECTION ON PERSON
GIVE DRUGS OR WATCH DIE!

Feel free to copy. I use my bracelet as a conversation starter. It helps people realize the seriousness of our disease.

On Where to Purchase:


I'm on a RoadID kick.
I have used a great number of companies through the years. Heck, I started wearing my first medical alert bracelet in elementary school. My current favorite is RoadID. I own several of them, all different styles. I have also ordered from N-Style and the original Medic Alert Foundation. Here are a few others

It doesn't matter if it's a dog tag, a necklace, a bracelet, or even a shoe tag. The important thing is that you WEAR IT and don't take it off. Find something that works for you.

In Conclusion:

Y'all have no excuse as to why you do not have one. If money is an issue, CONTACT US! If you are ashamed or embarrassed, GET OVER IT! This can be the difference between your life or your death.

Give Drugs. Or Watch Die.
You choose.
I am passionate about this topic. I'm tired of reading stories about serious injuries and deaths due to people in our community not receiving their emergency injection in time.

Let's change the stories.
Let us work together so that we can remain Clearly Alive.

I also want to hear from y'all. What's your favorite medical alert bracelet? What does your bracelet say? Has it ever been used in an emergency? Please comment! And please share this information.

Did we forget anything? Please comment below! 
Have a suggestion for a future topic? Suggest it here!

Medical Disclaimer

All content found on this website, including: text, images, audio, or other formats were created for informational purposes only. The Content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. 

Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this Website. If you think you may have a medical emergency, call your doctor, go to the emergency department, or call 911 immediately.

By using this website, you acknowledge and agree to and accept these Terms of Service, including all policies and terms linked to or otherwise referenced herein.

Reliance on any information provided by this website is solely at your own risk.