Friday, July 11, 2014

Hong Kong

My husband and I used the Malaysian holiday of Wesak to venture to Hong Kong. We were graciously hosted by Wendy and her husband Theo. Wendy was diagnosed with Addison's Disease in 2012. Until Wendy picked me up from the airport, she had never met another living with Primary Adrenal Insufficiency in person. Knowing that you are not alone in your journey is powerful.

Katie, Theo, Wendy, and I at before we went to the Night Market.
We discussed the differences in health care between America, Hong Kong, the UK, and Malaysia. Each country definitely has good and bad. In the end, we realized that we just need one kind and compassionate doctor that is willing to work with us and understands that treatment for Adrenal Insufficiency cannot be purely textbook.

Dinner.
We acknowledged the importance of trusting our family when they see us starting to fade. As we continue to fade, we have a tendency to become both stubborn and extremely irrational. We must trust our husbands when they point out that we are not feeling well. We must practice not responding in anger when they suggest taking a little bump of HC, eating a snack, or drinking some more water. They love us dearly and are committed to fighting for our health by our side.

Theo teaching my husband how to make traditional dumplings.
We can also gain insight with how well we are doing by noticing how our animals behave around us. Both Max and Mig (my olive thief cat) are able to detect when our cortisol levels begin to drop. This has helped me out numerous times when I was living alone in my apartment. I know of others within the Adrenal Insufficiency community that have seen similar behavior with their rabbits and dogs.

I found a wig! And a cat named Max!
Max clearly did not share the same level of excitement as me.
Although we live with this disease, we do not need to manage it in isolation. I rely greatly on my husband, my mom, and even my cat to help me when I begin to fade. I communicate daily with others in the Adrenal Insufficiency community to share experiences and learn. We do not need to walk this journey alone.

If you do feel alone in your journey, send me a facebook message so I can connect you with a thriving online support group. May we all fight daily to remain Clearly Alive.

Oh yes. Hong Kong Disney Land. Be Jealous.

2 comments:

  1. Love this post! I've never heard anyone mention animals being able to recognize something like that, but it certainly doesn't surprise me. Glad you're doing well! :)

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    1. Thanks Casey! :)

      I first learned about a dog being able to detect low cortisol through Coco's story: http://medicaldetectiondogs.org.uk/karen_and_coco.html

      Only later did I make the connection that my olive thief can detect it as well. Though I do not think he will be willing to carry around my emergency injection for me.

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